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Quality of Life studies are those that are looking at
factors which effect quality of life issues such as coping,
support, side effect management, etc.
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Defining the Role of a Breast Cancer Resource
Specialist (BCRS) and Measuring its Effect on
Patients’ Satisfaction with Care, Understanding of
Support Services, Self Efficacy, and Quality of Life In order to find out if a Breast Cancer Resource Specialist (BCRS)
makes a difference in breast cancer patients’ ability
to cope with their breast cancer, their satisfaction,
their quality of life and their understanding of
support services we will be conducting a new
randomized study. Over the next year, we will recruit
160 newly diagnosed breast cancer patients. The women
in the intervention group will receive proactive
communications from the BCRS throughout their breast
cancer treatment. All participants will complete ten
surveys over approximately six months. This study
will help us learn whether this is a role that would
benefit ALL breast cancer patients here at Hartford
Hospital.
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The Effects of Training
and Follow-up Patient Contact on Utilization of the
Internet-Based Information and Support Program CHESS
(Comprehensive Health Enhancement Support System).
This is an on-going randomized study whose goal is to
recruit 250 patients from both the breast cancer and
prostate cancer population. The study will measure
whether a hands-on training session plus follow up
phone calls will make any difference in usage of the
CHESS program. The relationship between usage and
satisfaction will also be explored.
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Centers
of Excellence in Cancer Communication: 1) Mentor Integration
Project, 2) Component and Couple Analysis of Cancer
Communication.
Awarded in June of 2003, this is an on-going National Cancer
Institute grant, in partnership with the University of
Wisconsin, where we will study the effects of interactive
cancer communication systems. 700 patients will be
recruited for this study, with over 300 from Hartford
Hospital. Recruitment is expected to begin on 2/15/05.
Andrew L. Salner M.D., Director of the Cancer Program, has
been asked to chair the national advisory panel for these
grants.
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Web-Based
Support For Informal Caregivers in Cancer.
This new study funded by the National Institute of Nursing
Research and the National Institute of Health will be
looking at reducing caregiver burden through the use of
CHESS through information, skills building and emotional
support. Recruitment to this randomized study will begin in
early February 2005.
For more information about the above
Quality of Life Studies, contact:
Diane Ward, RN, BSN -
Coordinator, CHESS Program, Hartford Hospital Cancer
Program
Phone: (860) 545-3781
Email:
dward@harthosp.org
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